I took this photo years ago, 5-7 years ago as part of a personal campaign to raise endo awareness. I am so happy that there are more communities now for endo sisters to support each other. When I was diagnosed at 12 the only people who understood were my family. My mom, aunt, cousin, sister were all diagnosed as well, years before me. None of my peers and few doctors understood or took me seriously and I had built in support. I have been humiliated, disrespected, talk down to, ignored, told I was lying or "drug seeking" AFTER my diagnosis and even after surgeries! I see the struggles of women who don't know what's happening and not getting answers and it hurts! It's infuriating!
The symptoms of endo were first recorded 4000 years ago - before the first record of bone or breast cancer (~3000-3500 years ago). Endo was only named 100 years ago, there is no cure, no reason, no risk factors other than being a woman. Any woman. One in ten suffer, regardless of race, nationality, religion, or socio-economic status. This is indicative of the patriarchal society we live in: why is a committee of men in Congress deciding women's reproductive health rights when they literally know NOTHING about it?
Thank you @_endometriosis for your page and for connecting people across the world. It is with a grateful heart that I can share in the anger, outrage, pain, confussion and loss that this diagnosis can bring. #endometriosis #endosisters #endoawareness #fightendo #womenshealth #womensrights #humanrights #healthcare #womensreproductiverights #womensreproductivehealth #birthcontrol #surgery #chronicpain #fertility